Date lodged: 1 June 2016
To ask the Scottish Government what support is provided by the NHS for people with dysautonomia.
Answered by: Aileen Campbell 21 June 2016
Dysautonomia is an imprecise diagnosis that describes a long term condition that has a number of underlying conditions. It includes postural orthostatic tachycardia syndrome (postural tachycardia syndrome; Ehlers Dahnlos syndrome; variants of chronic pain; as well as myalgic encephalomyelitis/chronic fatigue syndrome and other syndromes which are characterised by severe unpredictable fatigue; postural hypotension (fainting); and a general disruption to activities of daily living. There is no specific treatment but a clear diagnosis allows patients and their families to take back control and begin to self-manage their condition. Depending on the patients symptoms, there are a wide range of NHS services available to provide the necessary support. Any specialist input would be to offer a detailed assessment and diagnosis and advice on a self-care treatment plan which would be administered as locally as possible.