Date lodged: 10 February 2017
To ask the Scottish Government what plans it has to ensure that specialist healthcare advice is available for people with Huntington's disease in (a) Moray, (b) the Scottish Borders, (c) Dumfries and Galloway and (d) other areas of Scotland where it considers there is a lack of this advice.
Answered by: Aileen Campbell 7 March 2017
NHS Boards are responsible for planning and delivering healthcare services, including specialist services, to meet the assessed needs of their resident populations, taking into account strategic frameworks and guidance, within the allocations provided.
Additionally, Scottish Huntington’s Association were awarded £120,000 in Scottish Government funding to develop a National Care Framework for people with Huntington’s Disease. The framework aims to help ensure families affected by the condition are given the best possible care, information and support - regardless of where they live in Scotland. This work is still under development and we look forward to the publication of the framework, and next phase of this work, later this year.