Date lodged: 7 February 2018
To ask the Scottish Government what progress has been made on the inclusion of the experience of patients under 16 in the Scottish Cancer Patient Experience Survey.
Answered by: Shona Robison 28 February 2018
A stakeholder group has been established to provide advice on the methodology for the next Scottish Cancer Patient Experience Survey. However, the group agreed that it would not be appropriate to extend the Scottish Cancer Patient Experience Survey to children who are under 16. This is because the survey materials would need to be significantly tailored for those under 16, both to capture the different issues facing children and young people with cancer and to take account of the different information governance requirements for children.
We recognise the importance of ensuring that patient experience is captured and used in a meaningful way to influence the care that NHS Scotland provides to children and young people with cancer.