Date lodged: 3 December 2018
To ask the Scottish Government what its response is to concerns suggesting that cystic fibrosis clinicians are not using the Peer Approved Clinical System (PACS) Tier Two as a route to access the drug, Orkambi, for people with the condition.
Answered by: Jeane Freeman 21 December 2018
The Scottish Government’s Chief Medical Officer met with cystic fibrosis clinicians on 27 November to talk them through the PACS Tier Two process and to reaffirm that the cost of medicines should not be a decision-making criterion. We continue to strongly encourage clinicians to make use of this system if they judge a medicine, such as Orkambi, to be appropriate for their individual patient’s needs.